Author Archives: Rick Powell

About Rick Powell

Queer. Contrarian. Lover of beer. Living with cancer. American blogger, writer and serial expat living in Buenos Aires, Argentina

Biopsy results in

On yet another warm autumn day in Buenos Aires, I went to Hospital Penna to get my stitches removed. Being a veteran at this stuff, I showed up 2 hours after the 8 AM callback, ’cause they never see me before 10. What can I say? I’m sick of waiting around.

That all went fine, although it’s a strange feeling, thread pulling through underneath my skin. It vibrates as it’s tugged through; it almost makes a sound. Then I asked about the biopsy on the piece of my colon they removed. This young doctor — cute, short, brown — had forgotten about it. Not that it’s important or anything. When he got back he just looked at it, half-smiled and nodded his head.

Well, WELL? I was thinking.

He said a paragraph or two in Spanish that I couldn’t understand other than to tell me that I needed to get a couple copies made and bring one back to him.

I did, just around the corner on the hospital’s campus, and on the way back thankfully ran into one of my main doctors, Cinthia. She told me, in Spanglish, to make sure that my oncologists at Marie Curie got a copy and to come back the following Friday to Penna, for what she didn’t say. I’m assuming it’s for a pre-surgery consult. Yes, I still have another surgery pending — to remove the colostomy.

I told her, wait, I don’t understand this piece of paper.

She looked at it, mumbled some stuff in Spanish and said, “No hay tumor.” I knew what that meant but just to make sure I understood that, she said, “Muy bueno. Excelente. MUY bueno.”

There was no cancer detected.

I’ll let my oncologists have the last word on this one, sometime next week if I can manage to get an appointment; but, for the moment at least, I appear to be cancer-free.

Do you have 10 bucks worth of support in your pocket?

Update: So far, 4 people still care.

Hola desde Buenos Aires!

This is Rick, someone you donated to help keep alive at some point. Well, I’m happy to say, it worked.

I just came out of surgery on the 15th of April and it went better than expected. If you remember, my most recent scans had indicated that the tumors were so small that they could no longer be detected on my liver or peritoneum.

The surgery was intended to find whatever cancer remained and remove it.

You can imagine my shock, after lots of bad news, and after waiting for over a year, when they told me they didn’t find any cancer.

Let me repeat: No. Visible. Cancer.

That doesn’t mean it’s not there, just that they can’t see it. But, wow! Right?

My next surgery in about 6 weeks will be to remove the colostomy. After recovery I can hopefully begin living a normal life again.

Although I’ve started writing for the UK version of ehow, they haven’t published any of my articles yet and I’m scrambling to find the skills to right like that.  I’m finally able to do art walks again, I think, but it’s turning cold here and tourism is down. I’m down to my last 6 pesos, and still need to eat, still need to buy medical supplies, will need to pay rent again in 2 weeks.

So I’m returning to the well of generosity once again in hopes that there’s still water there to draw from.

But, I’d like to do it somewhat differently. Please donate USD $10 if you can and then ask and encourage a friend or colleague to do the same via social media, or better yet, email.

Share my blog. If you found this on Twitter, retweet it. Share with your friends on Facebook.

If 100 people donate $10 I can breathe easy for a month or so, and the impact on any one individual’s wallet would be negligible. My total follower/friend count online is 50 times that. Yours probably is, too.

You’ve already helped get me this far. Please help me cross the finish line — it’s so close! — and thanks so much for your support.

My PayPal address is mettray at gmail dot com.

Do you have 10 bucks worth of support in your pocket?

Senses of self

There were no mirrors in my private hospital room’s toilet so I hadn’t seen myself for almost a week. It should come as no surprise to anyone who’s met me in person that I don’t pay that much attention to my face anyway. What’s there to see? Crooked glasses; an unwillingness to shave the salt ‘n’ pepper; a chin with a tendency to droop when I drink too much; wide, angry eyes.

When I have to look at my body, my torso — when changing my colostomy bag, for example — I tend to just look down. It’s somehow less disturbing that way to see the changes my body’s undergone after peritonitis, two emergency surgeries, a radiation cycle, and several cycles of chemotherapy: A buried navel once wrenched to the right but now nearly covered, a suspected incisional hernia which I’ve never had the patience or will to have diagnosed, undulating folds of bulging belly-flesh that make me wonder what’s under there, a chronic blister filled with black blood, a souvenir from Hospital Rivadavia.

Coming out of the hospital and crashing for a night with friends in Congresso, I looked in their mirror and saw a man who had made a spectacle of himself in a way that most cancer patients do not. Or don’t have to. I’ve detailed the humiliating aspects of my colostomy bag, the frustrations of managing the public health care system in a foreign country, the anger of knowing that another human being wants to destroy me, the depression of poverty and isolation and living without the primary support of a partner, spouse or family, the bizarre conundrum of not really wanting to die anymore and yet not being able to see another way out, except for more pleading, more writing and more spectacle. Writing in this way means an additional level of embarrassment when going out, over and above the kind that’s there for every terminal patient still trying to have a social life — no one really knows what to say to you. Those with the weakest character usually end up saying nothing, or something stupid, which is kind of a relief, sometimes of the comic kind. (Some kind soul actually said to me, back when the watchwords were Stage IV and metastases, Get well soon!) But sometimes everybody ends up saying nothing, which is no comfort at all.

Now that I’ve finally made it past the surgery (after, what, 4 runs at it?) and having received the startling news that there is no visible cancer, I don’t know where I am or what I’m doing. I still have the colostomy, but in a little less than two months, if I make it (see: poverty), I’ll have another surgery to remove that, and then… what?

I’d like to start digging ditches, something physical, something far, far away from social media. You’d think because social media helped save me, that I’d be a booster. You’d be wrong. I’ll really become a misanthrope if I get another like on life-threatening or life-altering or life-changing bits of writing that I’ve wrenched out of myself like the catheter the nursed pulled out of me last week, taking two tries — it was a long fucking tube. I don’t want to be liked, in that way anyway, and I don’t think I’ve written in a way that makes that easy. Honest writing really isn’t all that likeable. Yet, they tell me, it goes viral.

But still, I would like to stop it, stop writing. About cancer, about anything. I want 5 years at least of cooking, eating, fucking (if I can figure out how to disrobe in front of another human being without the act itself being the point), working out, even, maybe. Anything to forget the body that I was, the mind that made it so.

I imagine myself standing alone, looking out into a dark so black and smelling an earth so rich as to make me forget the smell of my own drying blood, an iron odor that’s far too familiar. I want blurs of banal experience I would find tedious and pointless to construct paragraphs around and others would find tedious to read: Smoking silently on a new friend’s porch, drinking an unremarkable beer, conversation revolving around produce or how blue the sky, unpressured with confessions or admissions of mortality or weakness, with everyone around me forever clueless to my scars or scabs, or the memories of shivering violently, naked under a sheet, a fresh, foot-long Frankenstein-slice in my belly, on a gurney with no one who could speak with me within earshot, or even walking distance, eyes squinted closed like a newborn’s, and weeping.

Incision. Hospital Penna, Buenos Aires, 2013.

Incision. Hospital Penna, Buenos Aires, 2013. Photo by Kate Sedgwick.

What comes after

I died once. It wasn’t a big deal at the time, at least for me.

I was out cold on an operating table during a surgery to remove the remaining cancerous tissue in my colon, and also to reverse my colostomy. But in a chain of events that the doctors later had trouble explaining to an Argentine friend, I went into septic shock and stopped breathing. My heart stopped. I was resuscitated and put into intensive care where I woke up 5 days later.

I wasn’t told about the dying part, and only in bits and pieces over time, until I was out of the hospital. My friends knew but kept it from me when I was in the hospital. They didn’t want to upset me. It’s a bit sad that they didn’t know me as well as I thought they did.

I died. I was revived. Nothing happened in between. That’s exactly what I’d expected. That was exactly my belief, and now my own experience had confirmed it. That’s a comforting thought, not a troubling one.

I didn’t see a light. I didn’t see my mom or dad. I didn’t even see Johnny Cash, although under the influence of painkillers I had vivid, psychedelic dreams about limbo and the afterlife where I met Hank Williams and Jean Genet on a bridge to nowhere. And there were trolls.

In fact, the thought of a eternity of afterlife, no matter where it’s spent, sounds pretty scary. Now I know, in an immediate way more important than simple faith or studied belief, that there will be an end to things, to everything, and it’s nothing and nothing to be afraid of.

Note: I’ve been assured that surgery will proceed, finally, this coming Monday. 

This tunnel has no light

I was turned away from the surgical hospital for the third time this past Sunday. Or maybe it was the 4th. I don’t know anymore.

I wasn’t the only one turned away but I was the only one with a friend there to chew out the young chubby doctor, who was trembling by the time Kate got through with him. I didn’t feel sorry for him. He’s a doctor; he needs to experience that and worse. I’ve seen him strolling around the campus of the hospital — a bit too flip and confident for my sense of propriety, considering where he is and the responsibilities he has.  And he proved how flip he was by saying my being turned away was not his problem.

Kate took the news a lot worse than I did. i guess I’m used to it by now.

I now have to decide whether to pursue other treatment options or live out what life I have left as comfortably as I can. My friend Gabi has composed an e-mail to the head of surgery at Penna explaining my situation, and asking for his advice. It’s something he or someone on his staff should have had the sense or the balls to do a long time ago:

We’re sorry, Rick, but no surgeries are possible here for the foreseeable future and so considering how important it is for you to get that tumor cut out in a timely manner, we suggest you try another hospital. We can help you with that.

Instead, they’ve simply strung me along, following some sort of ridiculous bureaucratic protocol that ends up inflicting more suffering on an already suffering person. False hope, really, is the worst thing you can offer someone. And they’re doing this every Sunday to every group of people that shows up to be admitted and then turned away, not just to me. As a friend suggested, that in itself is a violation of the Hippocratic oath. And there’s just no justification for it.

But anyway, I give up on Penna. It’s not going to happen and I just have to face it. I also have to face the growing discomfort emanating from my abdomen, where the latest lesions have spread. Oral chemo is little help when it’s metastasized in the peritoneum and intravenous chemo, which I refuse to accept anymore anyway, helps only a little. There are experimental procedures that I’ve read about on the Internet but my oncologists haven’t mentioned them. They’re probably too expensive for a public hospital and aren’t standard in the States, either.

So that’s it. The only encouraging note is that somehow the cancer has not mutated and continues to respond — in the colon and liver — to oral chemo. My body seems to be holding on, although I get tired a lot easier than I used to. But still, I’ve already beat the odds, not unlike my mom did when her liver started to fail.

My birthday is next month. I’ll be 51. I was diagnosed with cancer in December 2010. Many of the people I used to see at Hospital Marie Curie Hospital have died. But I’m still here.

Essentially homeless and leaking money, but still here.

If you would like to donate — money that, at this point, will be used to live life better and die a comfortable death some unknown time in the future — you can PayPal me at mettray at g mail dot com.

A fool in April

If all goes well, I’m going to miss the next Second Story Buenos Aires, and that sucks because I thought of the theme — PARANORMAL — and I believe I have a good story. It’s my one and only true UFO story. You want to believe, right?

And I want to believe that the little piece of paper with two stamps from doctors on it and a date really and truly means that I will be admitted to the hospital for surgery on April 7. (Basically, Kate pulled the suicide card to get their attention, otherwise I’d still be ignored.)

I won’t believe it, however, until I’m counting down from one-hundred under the anesthesiologist’s rubber-gloved hand.

But anyway, that is what it says will happen and for some fucked-up reason I’m holding on to hope.

If this turns out to be another fake-out like the last three, I’m done. Seriously, I’m done. No more chemo. No more doctor’s visits. No more attempts to get a surgery date. I can’t go through this anymore. I won’t go through this anymore. I’ll live out whatever time I have left as best I can in my current condition — with a tumor in a my gut, lesions on my peritoneum and a colostomy bag taped to my beer belly.

I’m not dead yet

Back when I was living in the slug-infested flophouse, waiting on an appointment to get a PET scan, I researched how to kill oneself and found Final Exit. The book details several methods, including pills, slicing one’s wrists and others. But it only recommends one — plastic bag + helium. It’s quick, painless and, if done correctly, ensures death. So the book says.

This book isn’t obscure. You can buy it on Amazon. So I wondered why I had never heard of this method before, especially if it was as effective as the books says it is. In pop culture, potential suicides either take pills, shoot themselves, hang themselves or jump off buildings. They’re all very dramatic but all of them have the potential to fail.

So what’s wrong with the bag?

it’s creepy, for one. I tried on a couple bags for size, as the book suggested to practice before going through with self-delivery — its term for suicide for terminal patients. Even without the presence of deadly gas, the experience wasn’t pleasant. I decided, then, that I couldn’t do it. It made me feel panicky  a little queasy, and for some reason my mind flashed back to one of the strongest images I remember of the time immediately following my mother’s death: Coming back to the house after her funeral, the floors were scattered with her empty shoes and slippers, tiny and old-lady feminine. They were the saddest things I’d ever seen in my life.

The bag is also a bad look. I imagined what I would look like when found — slumped down in the bed with a plastic bag that advertises Adidas — looking ridiculous, in other words. I wasn’t ready.

This past Sunday, I tested a few bags for holes and again put them over my head. I didn’t panic. I just worried that the one that was tall enough wasn’t wide enough. Other pressures had overridden my vanity and fears.

I’d gotten to the point of being mostly practical, taking a calm assessment before making a final choice, which, thanks to intervention, I didn’t have to make.

Desperate Measures

I will have to leave where I’m staying on this coming Tuesday night at the latest. I’ve been bouncing around from friend to friend. I’m also almost out of money. I have ARS $1050 of my own money left. The amazing fundraising effort spearheaded by my friend Vivi has helped get me through the last two months, along with money earned from art walks, a few affiliate sales and a recent donation from the Mums and the performers at Second Story Buenos Aires.

But the money raised was meant to tide me over for a week, maintain me during the hospital stay and provide some seed money for a new life, however, short, after surgery. The surgery didn’t happen — it should have happened a year ago, 6 months ago, two months ago, a month ago. But I’m in the public system and things don’t move like they should.

I have a new date for surgery on the 25th of this month. After being punked more than once, I can’t say I have a lot of hope. But I’ve been trying to stay positive and focus on each new date. I’ve wanted to give up more than once. A lot more than once. But so many people have helped me, including Argentine doctors, I just couldn’t let all that effort, time and money turn out to be for nothing. Yes, I’ve let others help me decide what the value of my own life is. In this joyless stasis, I have a hard time calculating it for myself. But part of me does want to see what sort of life I can create with whatever time the surgery gives me.

But, it’s almost over now, one way or the other.

I have no where to go. I don’t have enough money to stay in a hostel from the 13th to the 24th. I can’t be homeless in Buenos Aires with cancer and a colostomy bag. I’m humiliated to ask for more help from my friends.

I will make a decision to deliver myself from this life — in the parlance of the Hemlock Society — on Monday night. I have enough money to buy what I need to do that. Whether or not I have the balls depends on… well, whether or not I have the balls.

Unless I can make ARS $3000 in three days. That’s about USD $425.

I have no right to ask for this and feel absolutely no ill will or resentment toward anyone who can’t  help or doesn’t want to help. I’ve asked enough and folks have given so much.

I took myself off chemo yesterday, without consulting my doctors, which wouldn’t be possible anyway. I did it to gain back some energy. I declined an opportunity recently to conduct art walks because I could barely drag myself out of bed to go to the bathroom, never mind walking for three hours talking about art and history. So if I can, I’ll do some walks. But it won’t be enough. I’d have to find 21 guests. But if I could, that would be very cool.

If you want to help you can PayPal my helpmeet Claire at csadeghzadeh at g mail dot com. She can then Xoom me the money when it’s enough. If it’s not enough, the money won’t be in my hands and Claire can refund your money or pass it on to someone in Buenos Aires so they can donate it to Marie Curie Hospital where I’ve been receiving oncological care. The latter would be my choice. A little old lady roams the halls with a donation bucket every day and I haven’t given nearly enough.

If nothing else, you can share my blog with others on your favorite social networks or start a campaign on some fundraising site. I’m sure there are people who would be moved if they haven’t heard about my situation yet.

This is a terrible post to write and a terrible thing to ask, I know. It’s blackmail, of a sort, I guess.

I have friends tell me I’m valuable, that they value me, and that I should keep fighting. It’s very hard. I take what they say on faith, if you will, but I didn’t feel it at all.

I’m just too tired. I want it to end.

Stalled again

The day started out well enough. although I only got around 4 hours sleep, I did get up in plenty of time, washed the dishes, finished packing and left kate’s flat. Having never taken the subte on Sunday so early in the morning, I was taken aback to discover it wasn’t open at 7:15. Off to Corrientes for a bus. I dug into my backpack for my guia. Saw 101 and 115 would work. Waited 20 minutes for both, but none came. Got in a cab. Stated the address. Cab driver says, Soy nuevo. He doesn’t know the street Caseros. Huh? He stops the meter. I get out. Get another cab. This guy knows Caseros but when we reach it, he turns the wrong way. Sigh. I say, Señor, it’s back that way. We take another street back behind Parque Patricios, cobblestoned most of the way and slow.

Amazingly, I make it to Penna exactly at 8. Campus is deserted. I’m worried that somehow I’ve misunderstood the date. Find my surgery order and verify it. (It’s then the handles stretch and break on my bag that holds all my important papers including PET scans. The bag lands on its back in a puddle of water.) 6 people are waiting to be admitted in the waiting room outside the surgical ward. There’s one nurse on duty but otherwise what’s usually a busy building is quiet and empty.

We all wait another hour. The others chat about anything other than what I they’re there for. I appear to be the youngest. They all look as tired as I am.

Finally, a young woman in funny pants and silly shoes comes in. She says, She’s sorry, but the operating room is still out of service. The only operating room available is for la guardia, the emergency room. She says, Please come back tomorrow early and we will issue another turno. 7 people groan in unison.

I try to chat her up in English just to make sure I understand everything. She only knows the word, March, as in the month. Middle of march, the earliest date I can get. The sometimes available OR in la guardia seemed to have been held out like a tease — if we all just camp out there, they might make room for us. But no.

I’m the last one to leave the waiting room but decide to get my cigs out of a pocket in my backback so I can IMMEDIATELY light up when I hit outdoors. Then one of my doctors, a young woman named Stefanie, I think? comes in, does a double take on me. stops in the middle of the room and then says, “Richard, why are you here?”

I’m speechless for a few seconds.

But then tell her I have a surgery date. She asks to see my papers. I hand them over. The rest of the group has by now smelled the status of a real doctor and has come back to listen to what she has to say. I have fantasies that either the gringo card or the cancer card will get me in ahead of everyone else, even the geezer with hair as white and soft as bunny fur who tells her he’s in pain every night and has problems sleeping.

But no, she just repeats the same thing the other woman says. To make sure I understand she says it one more time in simplified Spanish, in the way I imagine to she talks to a child or a dog.

“Come back tomorrow and we will talk.”

And something turned in on itself

When I was a kid I would lie in bed and would either talk to god or play mind games. I say, talk to god because he never talked back, unless his voice consisted of the execrative silence of my suburban bedroom, and he never turned me into the Silver Surfer, as I'd asked more than once, sheets bunched in clenched fists and pulled tight across my neck. I was afraid I'd have to go through life like everyone else, that I'd never see another world, or glide through the emptiness between the stars.

Behind my eyes, though, I'd see what I called then, The Time Tunnel, named after a sci-fi show of the same name. In the show, the Time Tunnel was a large orange metal structure with spiraling gradating circles that created a portal through which the show's handsome heroes could pass and have adventures, usually saving the world, or someone in it.

When I closed my eyes and concentrated, a simulacrum of the Time Tunnel sometimes began swirling, like a pale white overlay hanging over the blackness of my eyelids. No doubt it was easily explained pressures put on the physiognomy of the eye but since I'd never heard or read about anyone talking about such a phenomena, I thought it was special to me. “Watching” it would render me into a kind of fugue state and although it wasn't exactly comforting, I would repeat the ritual whenever I had trouble falling asleep.

I've never told anyone about these practices until I started writing about them just now.

There were other things, other forms, behind my eyes. I saw faces. Like the Time Tunnel, their forms were ghostly and they moved. Detailed faces, always with distinguishing characeristics and characters — faces who inhabited other lives and stories, endured their own sufferings, surfed their own timelines. Sometimes they looked at me and sometimes not. When they did, it was scary. Or, scarier. I could never understand exactly why, though, they just registered as a vague menace

Once I started looking at them it was difficult to stop. Unlike the Time Tunnel trick, The Faces weren't a means to an end. They were compelling, yes, and I often invoked the experience out of some perverse curiosity, but once I started looking for them, as they emerged out of flat gray sightlessness and turned and transformed from second to second into other faces, and still other faces, with silent murmuring lips and sharp eyes, and shoulders and chins that turned from me, it was difficult to make them go away. I'd fall asleep being watched.

I don't know exactly when The Faces stopped appearing behind my eyes — possibly late adolescence. I don't remember seeing them in college or after.

After I moved to Buenos Aires, they came back. It would make sense if I started seeing them in the hospital after my colon split in two, but my dreams in those days were in pain-killer induced Technicolor and very, very weird. I spent a long time drinking beer on a bridge in an after-death neighborhood inhabited by Hank Williams and Jean Genet. I never saw them; but I knew they were there. Also, I flew over Cuba in a magic umbrella, navigating colorful currents in the air. If I can ever find the vocabulary to write about them, further, I will. But, not now.

These days I confront The Faces, and they seem not to like that much. They're even more detailed than I remember their being from childhood. I see their dimples and their moles. I saw a woman wearing intricately woven scarves and a funny hat, a man with buck teeth and a veiny neck and eyes that say, “I killed someone.” These details are fleeting, and are impressed upon me quickly, like stabs of a tattoo needle. I wish I knew what they meant. Maybe they're the dead. Maybe they're composites of characters I've seen in movies, or met in dreams, smoked out of my under-mind by anxiety and fear. I just know that now I seek them out whenever my eyes close.

I look them in their eyes and wonder, what if there were nothing?

Why does anything exist at all? What would non-existence feel like? What exactly is subjectivity?

Since childhood, playing all these head games in my bed, I've asked these questions. When I do, a sense of otherness, a concrete feeling of having rendered myself an other, of othering everything, of having, if only for a few seconds, separated the fiction of my self and looked at me from some other place, saw Rick Powell as finite and so very circumscribed by a body, by time, by faults that I'll never overcome, certainly not now, that recognition thrills me and races my heart.

But, ah, I have no words to describe it. That run-on sentence really doesn't get it. I just tried to invoke that contemplative, alienated state and failed. Still, I know that, hahaha, nothingness will exist for me sooner rather than later and it pisses me off that I won't be there to experience it.

But it's also comforting. There will be an end, and I think I'm going quietly after all.